Tuesday, April 26, 2011

Children's Miracle Network Hospitals Champions

Champions is a Children's Miracle Network Hospitals program that brings attention to the important work being done at its 170 children’s hospitals. It does this by honoring 51 remarkable kids who have faced severe medical challenges, and helping them tell their stories.

The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the nearly 17 million children treated at Children’s Miracle Network Hospitals every year. The 2011 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.

The Champions travel for a week in October, first to Washington, D.C., where they traditionally meet with their state senators on Capitol Hill, and the President of the United States during a visit to the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. There, champions meet Children’s Miracle Network Hospitals sponsors, hospital representatives and media partners who all convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.

Friday, April 22, 2011

Jacob's Story

Age 13

Tuscon Medical Center

Spina Bifida

If you’re looking for adventure, just spend a few minutes with 13-year-old Jacob. He has peered over the edge of the Grand Canyon, taken in the striking view atop Seattle’s Space Needle, and witnessed Yellowstone’s Old Faithful geyser shoot for the sky. Traveling with his own entourage, complete with high-tech wheelchair and medical equipment, hasn’t slowed Jacob down. He whizzed down alpine slides, basked on sunny beaches, fished in mountain streams, and has never met a roller coaster he didn’t like.

Jacob’s passion for life has helped him prevail through a lifetime of medical challenges associated with spina bifida and hydrocephalus. The day he was born Jacob had his first two surgeries. Now 13 years later, he has been to the operating room more than 50 times—and will likely be back again. To monitor his ongoing medical issues, he has a whole team of doctors including a neurologist, urologist and pulmonologist.

When he isn’t on a family road trip, Jacob loves to challenge his friends to Wii games, whip up the latest Food Network recipe, and play flag football with his buddies at school.